SO I saw my GI doc. I should say my new one. my last GI doc listened for about 2 min, wrote on his clip board and then walked out while I was still talking.  Anyway this one listened! Today I am just really freaking out. I can kind-of handle the embarrassing tests but the fact that she said "many biopsies" and then something about in the teens but I cant quote that word for word. you want to know the biggest fear. She finds nothing.  That is the most annoying part of having a rare genetic disease. Aside from doctors looking at you wondering what kind of bug you are. Having tests come back completely normal.  like my blood pressure. it was extremely high for 9 months and then went away for a year and now I have extremely mild high blood pressure like 120 over 80 but I will have spikes that last from 12 hours to 3 days in the range of 155/105 and then come back down to healthy normal for a few weeks before going back up to mild hypertension. and they don't know why except probably the FMF.  so now my stomach its just crazy. I don't think its FMF alone but an inflammatory complication called Behcet's Disease. researching it scares me silly. between FMF and BD i just sit and nod my head when reading research or notes from other patients.  ... ok more later this is just frustrating.