Amanda 的个人资料"Fury" that's me!照片日志列表更多 ![]() | 帮助 |
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2009/1/31 post biopsyOK I survived and now its another 3 weeks for the results. LOL. I knew I would survive the test even if it makes me nervous and I'm terrified of waking with a stoma. That's always my fear when they do anything with my abdomen. I was more scared of the prep and who wouldn't be. I don't know a single person that likes being turned into an experimental new shuttle for NASA. It wasn't that bad though. They gave me something new and granted it did evacuate my entire digestive tract it seemed to be a much gentler process.
I have been flaring back to back since last Friday. My youngest is also flaring. SO much so that he didn't even want his birthday cake! The fact that our abdominal flares last more than the 12 to 72 hours that a typical FMF attack lasts just compounds my thought of Behcet's. Its time to start the symptom journals again. I know it should be at least every 4 months that I journal someone but it is just aggravating and I'm stubborn. the fact that it would just help me seems to escape my mind some days.
Oh... back to the biopsies. The doc says that everything she could see looks perfectly healthy. Anything she will find must be found in the biopsies because visually at lease there are no signs of Crohn's disease, ulcers, or polyps. I don't like her wishy-washy answers to questions like: how many biopsies? "several" and "more than ten" were her answers. then: You are doing the Congo Red test right? yes yes were checking everything.. which was said rather 'sick of hearing the question" rather than reassuring. So if there is no Congo test I will upset to say the very very least. 引用通告引用此项的网络日志
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